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ISHAN WILLIAMS: I just
did a presentation

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at a church a
couple of weeks ago

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and a gentleman came up
to me after the session

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and he was like, "Did
I hear you right?"

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He said, "Did you say
that African Americans are

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2 times more likely
to have Alzheimer's

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disease than other groups?"

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And I was like, "I did."

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He said, "I have never
heard that before."

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It's those kinds
of moments for me

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that helps me understand why
I need to be in the community.

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It's like if I'm not going
outside of these four walls

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from the institution
where I work and can build

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those research programs
around awareness,

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it's not doing anybody
any good if I just

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write it in a journal.

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You need to have conversations.

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And I believe having
those conversations helps

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us to co-create the goals
of what the community needs

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as well as what our
research goals are.

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RANDY JONES:
Oftentimes, when we see

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that certain research
and clinical trials

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that part is left out.

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The investigators
develop the interventions

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without really asking the
community, or the members,

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or the patients
that are actually

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receiving the care--
going to receive the care.

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So having a community
advisory board

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is very important
and valuable and-- so

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that you can be
able to hear what

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is the priorities
of that community,

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how to address them, and then
also have a listening ear.

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And that-- I think growing those
partnerships is quite valuable.

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Right now we have a
community advisory board

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that's made of individuals
and their stakeholders

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from different sectors.

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It's almost like a family
almost where you talk with them,

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and they give advice to
what we should be doing

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and what we should
be looking at.

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They're really the
pulse of the community.

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ISHAN WILLIAMS: I'm a
community-engaged researcher.

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I think it's disingenuous for
us as researchers to continue

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to go into communities
to ask for things

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but not be willing
to offer things back.

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So this whole-- my whole
rationale, I think,

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in importance and drive of
why I do it is so that we can

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co-create this continuous
feedback loop so that they--

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community members
are really valued

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as experts of what is important
in their communities, how they

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live with disease, how
disease is expressed

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in their communities, and how
they take care of one another

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and incorporating that into
what we, as researchers, think

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is important.

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